Antibiotic Treatment

It has been 6 long weeks of antibiotic treatment. During these 6 weeks Frida was on oxygen, some days where better than others. There were some scary days where she would turn purple. Truth is she really needed her next surgery, but with the risk of the bacteria in her blood doctors did not want to risk anything. I know what you are thinking, shes turning purple just do the surgery. The problem with doing any procedure with this bacteria in her blood, it is at risk for her heart to get infected. Truth is shes has had a lot of repairs, iv lines, picc lines, and procedures done. She is a high risk patient; doctors have to cover all their tracks and be as safe as possible. Don't think she is just waiting and waiting even though that's what it seemed for the most part. If need be she would have emergency open heart surgery before her antibiotic treatment was completed.

We didn't waste time waiting. Frida Sofia had occupational therapy and physical therapy often throughout the week. Her baseline for tolerating tummy time was at 2 seconds, she couldn't hold herself up while sitting, and could barely hold her pacifier. Right before surgery she could be on her tummy for almost 5 minutes, begin to start catching herself before falling over from a seated position, and now has so much control with her pacifier. Little stinker even takes it out on purpose, lets it roll hoping I get up and give it to her.  I get up every time! I know its a bad habit, but she doesn't scream. With everything she has been through until this day she can have this one thing especially when we are in the hospital. I cant even lie, when I'm scared I still want a hug from someone I love. This is her way of communicating that she wants me by her side.
 
She made it to her 6 week treatment! The day I took this picture was when she went for a catheter procedure. It took about 3 hours. Everything went so well. Her cardiologist was able to take images of her heart to help prepare her sergeant on November 26th. Even though it went well he had to do a few repairs. These repairs made her more dependent on oxygen. It was just temporary until surgery and to keep her more comfortable. With everyone's better judgement it was the best choice because she could rest and be ready for surgery day. Everyone was just "give Frida what ever she wants". My child is too spoiled at times here but its heart warming. These doctors, nurses, OT, PT, child care specialist are her hospital family. It is who she sees regularly besides immediate family.