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Showing posts from December, 2018

First time meeting Santa Claus

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I know what you are thinking "Why is he blue?" This is Santa Claus from the Houston Police Department. She LOVED it!! She did not cry, she was not scared, she even had a face of why is he leaving when he had to go. She is even currently in love with the movie "The Star" on Netflix which is about the night Jesus was born. We have a Christmas lover on our hands! She also prefers Christmas tissue paper over her pacifier some days. She was 5 days post op from open heart surgery and looking amazing. Maybe 3rd times the charm and recovers faster. I'm kidding. She really needed this surgery and instantly as she was recovering I could see her color changed. She was pinker! She wasn't as pale or lacy skin when she gets cold. Her breathing and chest contractions looked so much better. She looked so relaxed; you could just tell that her body didn't have to work as hard to pump blood to her body or lungs. It is truly amazing!! Surgery was very long! Maybe abou

Antibiotic Treatment

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It has been 6 long weeks of antibiotic treatment. During these 6 weeks Frida was on oxygen, some days where better than others. There were some scary days where she would turn purple. Truth is she really needed her next surgery, but with the risk of the bacteria in her blood doctors did not want to risk anything. I know what you are thinking, shes turning purple just do the surgery. The problem with doing any procedure with this bacteria in her blood, it is at risk for her heart to get infected. Truth is shes has had a lot of repairs, iv lines, picc lines, and procedures done. She is a high risk patient; doctors have to cover all their tracks and be as safe as possible. Don't think she is just waiting and waiting even though that's what it seemed for the most part. If need be she would have emergency open heart surgery before her antibiotic treatment was completed. We didn't waste time waiting. Frida Sofia had occupational therapy and physical therapy often throughout t

Happy Halloween

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Happy Halloween from Frida Kahlo! I just had to, I couldn't help myself. The name fits, the personality fits, and honestly she just looks so cute! Everyone at the hospital were looking forward to this day because of what I had planned. People to this day still ask to see pictures. You are truly loved here my sweet strong heart warrior. I truly hope that when you are a teenager you don't hate me for showing you off so much.